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EntroSpring2012EssenceJodeeKulpwithBonnie.MorashaWinokurChancerandIyal.Womenshouldnotdrinkalcoholiftheyareplanningtobecomepregnantoraresexuallyactivebutdonotuseeffectivebirthcontrolbecauseawomancouldbecomepregnantandnotknowforseveralweeksormore.IntheU.S.halfofallpregnanciesareunplanned.23OneofthefirsttoconnectprenatalbraininjurywithhopefulstrategiestohelpchildrenandtheircaregiversliveloveandlaughthroughthedifficultieschildrenfaceasaresultofmaternalalcoholconsumptionJodeeKulphasbeenadynamicforceforadvocacyinterventionandassistanceformorethantwodecades.Sheisanationallyrecognizedspeakerinterventionspecialistandanaward-winningauthor.Herbooksarenowavailablein35countriesaroundtheworld.FeaturedonMinnesotaPublicRadioJodeeandherBetterEndingsNewBeginningspublishedbookshaveearnedsevenMomx19sChoiceawardsinadditiontoawardsfromWriterx19sDigestDove5StarHealthWatchandForewordBookoftheYear.JodeeandherdaughterLizhavebeenfeaturedonTigerWoodsFoundationx19sStartSomethingandinAdoptionTodayFosteringFamiliesMinneapolisStarandSunPost.ShefoughtfortheDesignatedCareGiverLawinMinnesotaranthe2007nationalcampforyoungadultslivingwithFASDandherwebsiteswww.betterendings.organdwww.toolboxparent.comarestorehousesofinformationforstrugglingparentsandchildren.DonnieKanterWinokurworkedfor28yearsasaproducercreativedirectorandwriterbeforebecominganauthorpublicspeakerandadvocateforchildrenwithinvisibledisabilities.Intheearlyyearsofmultimediasheproducedaward-winningeducationaltitlesfortheDiscoveryChannelandtheSmithsonianInstituteanddirectedandproducedCD-ROMsforRandomHouseBroderbundx19sLivingBooksseries.ShehasbeenfeaturedinAdoptionTodayandmostrecentlyintheNewYorkTimesMagazinex19sbreakthrougharticlex1cWonderDogx1dwrittenbyMelissaFayGreene.FactsAboutFASD1outof100livebirthsareaffectedbyprenatalalcoholexposure.FASDistheleadingknownpreventablecauseofintellectualdisabilityandbirthdefectsandaleadingknowncauseoflearningdisabilities.EachyearFASDaffectsapproximately40000infants.FetalAlcoholSyndromeFASthemostsevereandleastcommoneffectundertheFASDumbrellacoststheUnitedStates5.4billionannuallyindirectandindirectcosts.EffectsofFASDGrowthdeficitsMentalretardationHeartlungandkidneydefectsHyperactivityandbehaviorproblemsAttentionandmemoryproblemsPoorcoordinationormotorskilldelaysDifficultywithjudgmentandreasoningLearningdisabilitiesMorashax19sbookwhichwonaMomx19sChoiceAwardforOutstandingYoungContributortheReaderViewsKidsAwardfor2010BestChildrensBookoftheYearandthe2010ReadersViewsFirstPlaceAwardforChildren-YoungReader8-12gaveDonnieanentryintoschoolsystemstoeducateteachersandstudentsaboutFASD.RaisingPublicAwarenessWhatx19snextforthisdynamicpartnershipbetweenJodeeKulpandDonnieWinokurNuzzleLoveBetweenaBoyandhisServiceDogthesecondbooktocomeoutoftheWinokurfamilyx19sexperiencesjustwenttoprint.DonniewroteNuzzleanearlyreaderfromChancerx19sperspective.x1cGreatstrideshavebeenmadeineducatingparentsphysiciansandteachersx1dJodeesays.x1cNextwewanttowritespecializedcurriculumfromearlyreadersthroughcollegetodomorespeakingandadvocacyandtocontinuesharingstrategiesforsuccesswithchildrenaffectedbyFASD.x1dJodeenotesthatsheistenyearsaheadofwhereshewaswhensheandLizco-authoredTheBestICanBeLivingwithFetalAlcoholSyndromewhichhasbeentranslatedintoRussianandUkrainian.BothJodeeandDonnieagreetheirmostimportantcontribu-tionisbeingmotherstotheirchildrenx14seeingthemfirstashumanbeingswhojusthappentolivewithincredibledifferences.OrasDonnieputsitx1cBelievingintheirabilitiesandtreasuresversustheirmedicaldiagnoses.x1d